We were looking around to find information on my condition and other resources. There is not much Australian info around so I decided that I would create a place that people like me, and friends and families, can come and share their stories and experiences. I hope that professional people will visit, to share their expertise and knowledge. With input from us ALL, I hope to make this site a place for everyone. Also, this is a great place for everyone to come and keep in touch with me and all my friends !!!